A cornerstone piece of the residential experience is having staff who, by virtue of the fact that they are with the students and residents all day every day, learn the … Change ), You are commenting using your Facebook account. ( Log Out /  These donations are rare and are a vital component of research into the causes of autism. On certain days, only chocolate helps. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism… Her contact info is:  (215) 898-1935. #4       The Autism Speaks blog and their Facebook page. #3       The Autism Speaks Tool Kits! But what people don't know is that Autism Speaks is actually a terrible organization, denounced by autistic people themselves. Autism Speaks tells the world that autistic people are ultimately the reason that many parents divorce each other, and that autistic people are incapable of living full lives. ( Log Out /  #5       The people who work for Autism Speaks. Why do so many Autistic people protest against Autism Speaks? The majority of their funding goes towards autism “research”. Have I mentioned that they’re free? For those that aren't aware, Autism Speaks's mission is to "promote solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. Autism Speaks remains successful, despite the lack of support from people with autism because it caters to parents of children with autism. And as we compare, 22% of their … If Sponsors are interested in supporting Autistic people, we urge them to support one of … Yes, it’s that time of year again where we’re all pulled in a million different directions. I can’t tell you how many times I’ve learned something new from these pages, or realized I needed to make changes in our lives from something I’ve read. Learn more here. When we found out that A-Man is autistic, I went into research mode, like I do with everything. Change ), You are commenting using your Twitter account. Only 4-5% of their funds actually helps people with autism. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. Autism Speaks supports every horrible stereotype about autistic people. That is autism’s weakness. ( Log Out /  This is a post by Kimberlee Rutan McCafferty, mother to two sons on the autism spectrum and an Autism Family Partner at the Children’s Hospital of Philadelphia (CHOP). Want to help support the cause? We all need support – not just the child on the spectrum. A Diary of a Mom has sympathetically addressed the families who defend Wright’s description of autism. What's wrong with Autism Speaks? Western Illinois University. I can’t recommend the ATNs highly enough. By Sandy KinnamonI thought it might be helpful to give some personal context as to why I don’t support Autism Speaks and am participating in efforts to boycott them.My daughter was diagnosed as Autistic May 2012. This is a collection of links discussing various controversies involving Autism Speaks. We have a voice. Through … But before that happened… While most of them are not WP:RS in themselves, they may be useful to identify topics to discuss, and/or point to RS's that can be included in the article. 153 Autistic Axolotl A few weeks ago I wrote an article about how amazing my brother with aspergers is. Find out some reasons for Why is Autism Speaks badly? Autism Speaks Canada Need Personalized Support? #1 Our favorite reason- the services and supports provided to us by the Autism Speaks’ supported Autism Treatment Network. Event dates vary by location. One of those things for my family is the decision to donate to Autism Speaks. Starting tomorrow it will be Autism Awareness Month. Today, Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. ( Log Out /  Change ), Looking To Nudge Senator Elizabeth Warren Into 2016 Presidential Race – NYTimes.com, Malicious Prosecution Claim Against Hollywood Sex Abuse Accuser Can Proceed, Says Judge, Massive Car Bomb Explodes Near Home Of Iranian Ambassador In Sanaa, Yemen, Protests Erupt After Decision In Eric Garner’s Chokehold Death. View the original article here. They’re the most popular autism organization, but they’re so harmful.) From eating issues to sleeping disorders, behavioral challenges and the 100 Day Kit for Newly Diagnosed Families (the latter of which I wish I’d had nine years ago), these informational gems have helped us at times when even the professionals in our lives were stumped. ( Log Out /  Here's an over view of why many people with autism don't support Autism Speaks, and their controversies over the years. Why I Can't Support Autism Speaks From the eyes of someone they claim to speak for. Autism Speaks is enhancing lives today and accelerating a spectrum of solutions for tomorrow. Autism Reasons Speaks Support Post navigation. You are alone. Since I wrote that piece, I’ve had many conversations with friends about the spectrum. That may help tone down the "fear and pity" image of autism that Ne'eman and other self-advocates protest. ... Read the "I Am Autism" transcript, or watch the video. People always applaud Autism Speaks for its advocacy. Oct 16, 2016. ( Log Out /  There are many other autism groups, like ASAN, the Autism … To my delight, some had decided to do some research. Autism Speaks is also responsible for the atrocity known as “I Am Autism.” It was a video that was released as part of an awareness campaign. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. Philadelphia’s ATN led us to our sons’ developmental pediatrician, Dr. Amanda Bennett, who I am quite certain has saved our sanity on several occasions with her expertise and compassion. Bell admitted that Autism Speaks does not have any individuals with autism currently serving on its board. Kim wrote this blog in support of #GivingTuesday! I decided to take a chance to educate people on why they should not support Autism Speaks, why you shouldn't light it up blue and why … Reasons for “Why is Autism Speaks badly?” Because it doesn’t help autistic children and adults as they promised. 5 Reasons Why I Support Autism Speaks. Change ), You are commenting using your Google account. I loved talking to the families, but finally getting to personally interact with the folks from Autism Speaks was one of the highlights of the evening for me. Previous Post Dreamers Divided: Obama’s Executive Actions Leave Some Young Immigrants Out Next Post From the Philippines to Autism Speaks, with … Any way that works for you is the right way to participate — whether that's on wheels, on foot or online! Less support for Autism Speaks, though for now, we can only guess its impact. Change ), You are commenting using your Twitter account. They are several reasons why I no longer support Autism Speaks. Perhaps I should say this one is my favorite. But sometimes when I slow down a bit, my choices are simplified, maybe even actually easy when I take the time to breathe. Not research for improving therapies and equipment that helps individuals with autism, but research for a … The following joint letter explains why Autism Speaks is not an organization that ethical businesses should sponsor, fundraise for, or otherwise offer support. With two kids on the spectrum, there isn’t a ton of discretionary income rolling around in our household, but my husband Jeff and I give what we can. Alex Bingham. Here are the top five reasons why we support them and are so grateful for their existence. The group is also initiating a better outreach to adults with autism. Autism Speaks still has a base of support among families of young children, but it has very little support from parents of older kids, or autistic adults. We speak the only language that matters: love for our children. Ask if you would be okay with people talking about your friends the way that Autism Speaks talks about autism. Frankly it could have been overwhelming deciding which autism organization to donate to, as there are so many worthy ones out there. We are dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. Autism Speaks is Searching to “End Autism”. It’s obvious that Autism Speaks is an organization that is always working towards meaningful change in the autism community. This is the main basis of the #redinstead hashtag. #1         Our favorite reason- the services and supports provided to us by the Autism Speaks’ supported Autism Treatment Network. Finding Autism Speaks was a godsend for us then, and the organization helped us a second time when our second son was diagnosed with autism as well. I am not saying helping families with autistic children is not necessary and important, but if Autism Speaks only focuses on programming for parents, it abandons the children who are certainly in equal if not in more need of Autism Speaks’ help. #2       Dr. Margaret Souders, a registered nurse who is spearheading a revolutionary sleep program through the ATN, who literally made house calls and enabled us to break a four month cycle of insomnia with our youngest son. Autism Speaks is one of the largest autism organization, yet they are not focusing on autism affected people and their families. (Inside: 4 reasons to not support autism speaks are a must read for all autism mamas! Find the date of your local event by searching below! Change ), Looking To Nudge Senator Elizabeth Warren Into 2016 Presidential Race – NYTimes.com, Malicious Prosecution Claim Against Hollywood Sex Abuse Accuser Can Proceed, Says Judge, Massive Car Bomb Explodes Near Home Of Iranian Ambassador In Sanaa, Yemen, Protests Erupt After Decision In Eric Garner’s Chokehold Death. Read Tom A. Our capacity to love is greater than your capacity to overwhelm. From the #actuallyautsitic community, Autism Speaks is actually the farthest from supporting Autistics. Autism Speaks is one of the largest and most influential autism awareness organizations in the world. Autism Speaks Walk events will be tailored to fit local needs in each community, but our goal remains the same: to come together to raise funds for people with autism and their families. Autism Speaks puts great focus on “curing” autism, which reinforces another stereotype: that autistic people are unhappy. Share this: Twitter; Facebook; Like this: Like Loading... Related. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. Autism Speaks does not speak for me as a person living with Autism. ( Log Out /  “People with autism don’t support Autism Speaks.” This is far from the truth. The decision however was made easier for us many years ago, not long after Justin’s diagnosis, as my husband and I searched frantically for services and information for our eldest son with severe autism. The ATN is comprised of a network of hospitals, physicians, researchers and families at 14 sites across the US and Canada. Autism Speaks has been hailed as one of the greatest "advocates" for autistic people. You could not ask for more compassionate, knowledgable and kind individuals, and each one was so devoted to helping individuals with autism and their families. Change ), You are commenting using your Google account. The number to reach them is: (888) – 8AUTISM. In the small DC office that I worked at this summer, several employees had autism and we have weekly volunteers with ASD come in. That they are suffering from some terrible disease like cancer that needs to be cured immediately. We are a community of warriors. Autism Speaks has the ultimate goal of ending autism, by any means necessary. Autism Speaks does very well speaking for itself, but it does not speak for me, my fiance, or anyone else I care about who is autistic. Eventually, that research lead me to realize I’m autistic myself. Consider boycotting and writing to companies that support Autism Speaks. It also supports the Toddler Treatment Network, which develops … December 3, 2014 alishoaib464 Leave a comment. One of the biggest discoveries made was that people on the autism spectrum typically need a highly structured, customized atmosphere to make real progress, which is why residential settings become a must for children like Jonathan. Autism Speaks supports the Clinical Trials Network, which focuses on new pharmacological treatments. From my … I had the pleasure of meeting a number of employees when I spoke at the kick-off for the Philadelphia walk. “Autism Speaks has grown into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism.” It’s also right there in Part II of their Form 990 (U.S. tax … Read letters of people who have worked with Autism Speaks, and learn why they quit. ( Log Out /  In the video, the narrator, identified as “autism,” goes about spouting hate and … Autism Speaks is one of the most well known autism organizations, but has been under fire for their hurtful advertisement, the lack of inclusion of autistic voices, the support of Judge Rotenberg Center, and more. Researchers and families at 14 sites across the us and Canada some terrible disease like cancer needs! My delight, some had decided to do some research children and adults as they promised I had pleasure. 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